Not fade away: a memoir of senses lost and found

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Even a darkening world can be brilliantly lit from within. Born with a rare genetic mutation called Usher Syndrome type III, Rebecca Alexander has been simultaneously losing both her sight and hearing since she was a child, and was told that she would likely be completely blind and deaf by age 30. Then, at 18, a fall from a window left her athletic body completely shattered. None of us know what we would do in the face of such devastation. What Rebecca did was rise to every challenge she faced. She was losing her vision and hearing and her body was broken, but she refused to lose her drive, her zest for life and - maybe most importantly - her sense of humor. Now, at 35, with only a sliver of sight and significantly deteriorated hearing, she is a psychotherapist with two masters' degrees from Columbia University, and an athlete who teaches spin classes and regularly competes in extreme endurance races. She greets every day as if it were a gift, with boundless energy, innate curiosity, and a strength of spirit that have led her to places we can't imagine. In Not Fade Away , Rebecca tells her extraordinary story, by turns harrowing, funny and inspiring. She meditates on what she's lost - from the sound of a whisper to seeing a sky full of stars, and what she's found in return - an exquisite sense of intimacy with those she is closest to, a love of silence, a profound gratitude for everything she still has, and a joy in simple pleasures that most of us forget to notice. Not Fade Away is both a memoir of the senses and a unique look at the obstacles we all face - physical, psychological, and philosophical - exploring the extraordinary powers of memory, love, and perseverance. It is a gripping story, an offering of hope and motivation, and an exquisite reminder to live each day to its fullest. 'A remarkable story of resilience and heart, Not Fade Away follows Rebecca Alexander as she must navigate the world cursed with a rare genetic disorder that will one day rob her of both sight and hearing. Bereft of self-pity, funny, and bursting with honesty, Not Fade Away will get its hooks in you. I promise that by the end of her story, you will fall just as in love with Rebecca as I have.' Susannah Cahalan, New York Times bestselling author of Brain on Fire 'There is a saying that goes - you never know how strong you are until being strong is the only choice you have. Rebecca Alexander's indomitable spirit spills out on to the pages of this incredible memoir. She will lift you up . . . the way she did for me.' Hoda Kotb, New York Times bestselling author of Ten Years Later and Hoda , and Emmy-award-winning anchor of Today 'Her eyes and ears may be declining, but Rebecca's sense of self is sharply focused and profoundly tuned. By sharing her life, she has enriched mine and will yours, too. I love this woman.' Meredith Vieira, journalist and Emmy Award-winning television host

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9781592409419
9781494522377
9781592408313
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Grouping Information

Grouped Work ID ef67f5c9-2820-65cb-25f7-ea70c7ff51d4
Grouping Title not fade away a memoir of senses lost and found
Grouping Author alexander rebecca
Grouping Category book
Last Grouping Update 2018-07-17 22:54:22PM
Last Indexed 2018-07-17 23:42:16PM

Solr Details

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auth_author2 Alper, Sascha.
author Rebecca Alexander
author2-role Alper, Sascha.
author_display Alexander, Rebecca
available_at_catalog LSDHH, Main Kids, Main Library, Southeast
collection_catalog Biography
detailed_location_catalog LSDHH - Adult Biography, Main Library - Adult Biography, Southeast - Adult Biography
display_description Born with a rare genetic mutation called Usher Syndrome type III, Rebecca Alexander has been simultaneously losing both her sight and hearing since she was a child, and was told that she would likely be completely blind and deaf by age 30. Then, at 18, a fall from a window left her athletic body shattered. None of us know what we would do in the face of such devastation. What Rebecca did was rise to every challenge she faced. She refused to lose her drive, her zest for life and--maybe most importantly--her sense of humor. Now, at 35, with only a sliver of sight and significantly deteriorated hearing, she is a psychotherapist with two masters' degrees from Columbia University, and an athlete who teaches spin classes and regularly competes in extreme endurance races. She greets every day with boundless energy, innate curiosity, and a strength of spirit that have led her to places we can't imagine. Here, Rebecca tells her extraordinary story, meditating on what she's lost, and what she's found in return.--From publisher description.
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owning_library_catalog Nashville Public Library
owning_location_catalog LSDHH, Main Kids, Main Library, Southeast
primary_isbn 9781592409419
publishDate 2014
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subject_facet Alexander, Rebecca -- (Psychotherapist) -- Health, People with disabilities -- United States -- Biography, Retinitis pigmentosa -- Patients -- United States -- Biography, Usher's syndrome -- Patients -- United States -- Biography
title_display Not fade away : a memoir of senses lost and found
title_full Not Fade Away A Memoir of Senses Lost and Found, Not fade away : a memoir of senses lost and found / by Rebecca Alexander with Sascha Alper
title_short Not fade away :
title_sub a memoir of senses lost and found
topic_facet Alexander, Rebecca, Biography & Autobiography, Health, Nonfiction, Patients, People with disabilities, Retinitis pigmentosa, Usher's syndrome