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Twelve-year-old Kate's idyllic life in Baton Rouge takes a drastic turn when a mysterious shoulder pain reveals she has Fibrodysplasia Ossificans Progressiva, a rare genetic disorders, challenging her to adapt with support from loved ones and a pen pal, Amie, who shares her experience with FOP.
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Description
"In this novel in blank verse, twelve-year-old Cass struggles to cope with her father's recurring cancers that have dominated her whole life, with the knowledge that he is likely to die soon because the latest recurrence is worse--and with the possibility that she may have inherited the genetic disease, Li-Fraumeni Syndrome, that causes the cancers" Provided by publisher.
6) Saving the Tasmanian devil: how science is helping the world's largest marsupial carnivore survive
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Description
"In this addition to the critically acclaimed Scientist in the Field series, Dorothy Patent follows the scientists trying to put a stop to a gruesome disease before it's too late. Tasmanian devils are dying at an alarming rate from a type of tumor that appears to be contagious. What scientists are learning while researching the Tasmanian devil has potential to affect all animals, and even humans, as they learn more about how to prevent and hopefully...
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"When Alec asks Jess out, she knows it won't work. Is Alec charming? Of course. Attractive? Definitely. Can she not stop thinking about him...yes, but that's also the problem. Because Jess has rules. And the first? Don't fall in love. What no one knows is that Jess has inherited Huntington's disease from the mother that she cares for. And while witnessing her own future play out, Jess has learnt to keep everyone and everything at arm's length. But...
Author
Description
It's a question microbiologist Richard Draman thought he'd answered when he walked away from his career to focus on curing a genetic defect this is causing his daughter to age at a wildly accelerated rate. But now he and his wife must face the fact that eight-year-old Susie's time is running out. Determined to either save her life or die trying, the Dramans plunge into a bloody conflict between two powerful factions vying for control of a discovery...
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Description
For centuries, the women in Ninon Moise's family have been afflicted by obscure, inexplicable, medical phenomena. Seventeen-year-old Ninon is no exception to this bizarre family inheritance, and she wakes one morning with a debilitating and excruciatingly painful response to touch on her arms. Unlike her forebears, Ninon refuses to passively accept her cursed fate and rebels against the indifferent medical professionals who dismiss her condition as...
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"Normal. Who is to say what this word means? For Magda Newman, it was a goal. She wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments his friends took for granted. But Nathaniel's severe Treacher Collins syndrome -- a craniofacial condition -- meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly? But...
12) Come back to me
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Description
"Scientist Marian Creighton was skeptical of her father's lifelong research of ancient holy water--until she ingests some of it and finds herself transported back to the Middle Ages. With the help of an emotionally wounded nobleman, can she make her way back home? Or will she be trapped in the past forever?"--
Author
Description
"From a renowned oncologist and pioneer in integrative medicine, a breakthrough in treating and preventing disease by altering our genetic blueprint. What if the food we eat could target not only diabetes, obesity, heart disease, and cancer but the effects of aging? What if our diets could affect every aspect of our health by controlling the expression of our genes? While modern medicine largely focuses on treating symptoms with prescription drugs,...
14) Hallowed halls
Author
Description
Fired from a job she hates, Dr. Joy Gilbert returns to her small hometown to find her former fiancé single, her once vivacious mother struggling financially and physically, and Tressa, the daughter of the boss who just fired her, popping out of the back door of her car. Tressa refuses to return to the city, where her divorced parents struggle emotionally over the death of their son. Dr. Zack Tyler hires Joy, and when Tressa begins having blackouts...
15) Mercies in disguise: a story of hope, a family's genetic destiny, and the science that rescued them
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"The phone rings. The doctor from California is on the line. "Are you ready, Amanda?" The two people Amanda Baxley loves the most had begged her not to be tested--at least, not now. But she had to find out. If your family carried a mutated gene that foretold a brutal illness and you were offered the chance to find out if you'd inherited it, would you do it? Would you walk toward the problem, bravely accepting whatever answer came your way? Or would...
Author
Description
In her old life, Abby was a high school volleyball star with a textbook-perfect future. Then Abby and her sister, Brooke, receive a letter from their estranged dad informing them he has Huntington's disease, a fatal, degenerative disorder. And when the sisters agree to genetic testing, one of them tests positive. Fleeing to Catalina Island for the summer, Abby is relieved to be in a place where no one knows her tragic history. When she meets aspiring...
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"Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors...
19) Braced
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Description
When twelve-year-old Rachel learns that her scoliosis has worsened and she will need to wear a back brace to keep her spine straight, she is devastated; afraid that she will not be able to play soccer, and terrified that she will not be able to hide her condition from her friends and classmates--but her mother is determined to spare her the spinal fusion surgery that she herself had as a teenager.
Description
Clare has been in love with Henry her entire life. She believes they are destined to be together, even though she never knows when they will be separated: Henry is a time traveler, cursed with a rare genetic anomaly that causes him to live his life on a shifting timeline, skipping back and forth through his lifespan with no control. Despite the fact that Henry's travels force them apart with no warning, Clare desperately tries to build a life with...
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